Stigma in Leprosy Patients in the Community : A Systematic Review

Authors

  • Nadya Ulfa Kesumawardani Institut Kesehatan Medistra Lubuk Pakam
  • Bagus Alfrisa Institut Kesehatan Medistra Lubuk Pakam
  • Muhammad Reza Fahlevi Hanafi Institut Kesehatan Medistra Lubuk Pakam
  • Ria Apriliani Waruwu Institut Kesehatan Medistra Lubuk Pakam
  • Syah Fara Dillasani Sirait Institut Kesehatan Medistra Lubuk Pakam

DOI:

https://doi.org/10.62951/ijph.v1i4.194

Keywords:

Stigma, Lepers, Community

Abstract

The increasing incidence of leprosy in the community causes individuals with leprosy to experience psychological stress. This pressure can come from the individual's internal perceptions such as feeling insecure, feeling embarrassed, and feeling afraid of being shunned. Apart from that, the psychological pressure experienced by individuals can originate from external factors such as discrimination from society, labeling, and isolation in social life. The method used in preparing this article is the PRISMA method with database searches including Google Scholar, Digital Reference Garba, and Science Direct. There are 15 articles selected based on the criteria, namely published in 2018-2023, can be accessed in full text, articles in Indonesian and English, and are qualitative research using the keywords stigma, leprosy sufferers, and community. The articles analyzed were selected according to criteria with results showing that the stigma experienced by leprosy sufferers in the community consisting of self-stigma and public stigma. These two stigmas cause psychological problems in leprosy sufferers.

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References

Arisal, Agustang, A., & Syukur, M. (2020). Social discrimination of children with leprosy in Makassar City. Phinisi Integration Review, 3(2), 297–304.

ARMY, L. (2019). Perception of leprosy patients towards leprosy stigma in Ternate City. Kieraha Medical Journal, 1(2), 31–37. https://doi.org/10.33387/kmj.v1i2.1705

Correia, J. C., Golay, A., Lachat, S., Singh, S. B., Manandhar, V., Jha, N., Chappuis, F., & Beran, D. (2019). “If you will counsel properly with love, they will listen”: A qualitative analysis of leprosy-affected patients' ed-ucational needs and caregiver perceptions in Nepal. PLOS ONE, 14(2), 1–15. https://doi.org/10.1371/journal.pone.0210955

Couto Dal Secco, R. G., França, K., Castillo, D., AlHarbi, M., Lotti, T., Fioranelli, M., & Roccia, M. G. (2017). A synopsis of the history of Hansen's disease. Wiener Medizinische Wochenschrift, 167, 27–30. https://doi.org/10.1007/s10354-017-0590-2

Efendi, F. (2019). Systematic reviews. In Systematic Reviews (Vol. 94, Issue 3).

Govindharaj, P., Srinivasan, S., & Darlong, J. (2018). Quality of life of people affected with leprosy disability liv-ing in Purulia. International Journal of Health Sciences and Research, 8(February), 221–225.

Grzybowski, A., Sak, J., Pawlikowski, J., & Nita, M. (2016). Leprosy: Social implications from antiquity to the present. Clinics in Dermatology, 34(1), 8–10. https://doi.org/10.1016/j.clindermatol.2010.15.009

Gunnara, H., Yuliyana, R., Daswito, R., Juwita, R., & Sitanggang, H. D. (2020). Qualitative study of the existence of leprosy in Dendun Village, Mantang District, Bintan Regency. Teradu Health Journal, 11, 84–93.

Hannan, M., Hidayat, S., & Nirmala Sandi, M. (2021). Community stigma towards leprosy patients in Batuputih District, Sumenep. Wiraraja Medika: Health Journal, 11(2), 86–92. https://doi.org/10.24929/fik.v11i2.1658

Hidayat, M., Irawati, D., & Waluyo, A. (2020). Phenomenology study: Community perception of leprosy in the working area of Puskesmas Talango, 2020. STRADA Scientific Journal of Health, 9(2), 1463–1473. https://doi.org/10.30994/sjik.v9i2.487

Jatimi, A., & Hidayat, M. (2022). Psychosocial problems in leprosy patients: A qualitative study. Indonesian Health Science Journal, 2(2), 51–56. https://doi.org/10.52298/ihsj.v2i2.29

Jatimi, A., Nenobais, A. N., Jufriyanto, M., Heru, M. J. A., & Yusuf, A. (2020). Mechanisms and strategies to re-duce stress in leprosy patients. Indonesian Journal of Community Health Nursing, 4(1), 41. https://doi.org/10.20473/ijchn.v4i1.17540

Jatimi, A., Yusuf, A., & Andayani, S. R. D. (2020). Leprosy resilience with disabilities due to illness: A qualitative study. Indonesian Nursing Journal of Education and Clinic (INJEC), 5(2), 95. https://doi.org/10.24990/injec.v5i2.298

Jufriyanto, M., Yusuf, A., & Mundakir, M. (2020). The psychosocial experiences in ex-leprosy patients: A qualita-tive study. STRADA Scientific Journal of Health, 9(2), 733–742. https://doi.org/10.30994/sjik.v9i2.380

Maharani, S., & Idris, D. N. T. (2020). Analysis of disability and stigma on self-concept of leprosy patients. STRADA Scientific Journal of Health, 9(2), 926–935. https://doi.org/10.30994/sjik.v9i2.410

Ministry of Health. (2022). Towards elimination 2024: Ministry of Health invites community to eliminate stigma and discrimination against leprosy.

Muhammad Najmuddin. (2021). Stigma against leprosy: An overview of interpersonal communication. Al-Din, 60–73.

Nasir, A., Yusuf, A., Listiawan, M. Y., & Makhfudli, M. (2022). The life experience of leprosy families in main-taining interaction patterns in the family to support healing in leprosy patients in Indonesian society: A phe-nomenological qualitative study. PLOS Neglected Tropical Diseases, 16(4), 1–17. https://doi.org/10.1371/journal.pntd.0010264

Nugraheni, R. (2016). Analysis of self-concept on the quality of life of leprosy patients with disabilities at the Ke-diri Leprosy Hospital. Preventia: The Indonesian Journal of Public Health, 1(2), 164. https://doi.org/10.17977/um044v1i2p164-173

Putra, Y., & Tahlil, T. (2018). Family experience in providing family support to leprosy patients. Journal of Nursing Science, 5(2), 28–41.

Rai, S. S., Irwanto, Peters, R. M. H., Syurina, E. V., Putri, A. I., Mikhakhanova, A., Naniche, D., & Zweekhorst, M. B. M. (2020). Qualitative exploration of experiences and consequences of health-related stigma among Indonesians with HIV, leprosy, schizophrenia, and diabetes. Public Health, 15(1), 7–16. https://doi.org/10.21109/kesmas.v15i1.3306

Rismayanti, R., Tandirerung, J., Dwinata, I., & Ansar, J. (2017). Risk factors for grade 2 disability in leprosy pa-tients. Indonesian Public Health Media, 13(1), 51. https://doi.org/10.30597/mkmi.v13i1.1581

Sa’diyah, H., & Arsi, A. A. (2022). Social discrimination against former leprosy patients in the community. Hani-fatus Sa’diyah, Antari Ayuning Arsi, 11(2), 182–191.

Sekarningrum, B., & Yunita, D. (2017). Social exclusion and impoverishment of lepers. 6(1), 387–394.

Siregar, T., & Ratnawati, D. (2018). Family experiences in caring for leprosy patients in facing community stigma in Limo Village, Depok - West Java. Indonesian Nursing Scientific Journal [JIKI], 1(2), 63. https://doi.org/10.31000/jiki.v1i2.413

Sodik, M. A. (2016). Leprosy patients in public perception: A qualitative study of patient confidence (dis) in the community. Journal of Global Research in Public Health, 1(2), 99–106.

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Published

2024-11-26

How to Cite

Nadya Ulfa Kesumawardani, Bagus Alfrisa, Muhammad Reza Fahlevi Hanafi, Ria Apriliani Waruwu, & Syah Fara Dillasani Sirait. (2024). Stigma in Leprosy Patients in the Community : A Systematic Review. International Journal of Public Health, 1(4), 32–38. https://doi.org/10.62951/ijph.v1i4.194